Hello Nancy! John and I are thinking about you this morning! The Cancer Owl comic is a great way to let us know the frustration of chemo brain, and what you are experiencing right now. You are in our hearts and prayers daily, and the prayers of several of our church prayer groups. You are a woman of great courage and determination Nancy. We admire you and love you very much. Hugs to Daniel and your mom. Sandy and John
This past week has been chemo #4. Each chemo session is a new experience with new symptoms. Frustratingly I still continue to have an allergic reaction during the infusion. Even with trying new premeds and meds during the infusion, I still experience an out of body trippy feeling and inability to speak correctly. I have a big appreciation for my chemo nurses who have to deal with people who are 100% sick every day. This past chemo left me with over 24 hours of diahrrea, vomiting, and nausea. Nothing stays in so tomorrow I will go back to the cancer center for IV fluids and hopefully stronger anti nausea meds since nothing seems to be effective. The cats have been very happy to have me in bed today. I had all four on the bed with me; I think they know if don't feel well. Please continue to pray for overall healing but also specifically for healing for this current inability to eat or drink and get the nutrients I need.
Tuesday was my second chemo infusion but it almost didn't happen. My white blood cell count (WBC) had dropped from a 7 to 1.9 since the first infusion. The decision was made to proceed with chemo but the followup with a Neulesta shot on Thursday to promote bone marrow growth. The side effect-bone pain :( Also, I have to become more of a hermit and avoid places with lots of people and exposure to germs. Hard to do when I work with students and the public on a daily basis. Today I get unhooked from the chemo pump and then receive the shot. Also, on Tuesday I experienced an allergic reaction to the chemo. I became very sleepy but also trippy feeling, couldn't speak very well or had to concentrate on my words, and lost bladder control. Now, I must take some pre meds before chemo and while wearing the pump to keep that from happening in the future. So far no noticeable hair loss but found out it might take another couple weeks to show up...
Today I have "good" news to share! I still have 4 rounds of chemo left but today is my last day with the oxaliplatin. The oxaliplatin causes cold senstivity in my hands, feet, and mouth, as well as neuropathy, auditory hypersensitivity, and overall allergic reaction. For the final 4 rounds I won't have oxaliplatin in my chemo lineup! Also, the oncology team at Huntsman in Salt Lake City reviewed my case at their tumor board meeting and determined based on the scan that the interventional radiologist most likely did get the majority or all of the cancer lesion in the dome of my liver. So most likely no surgery unless something new shows up on a scan. Right now the plan is another scan after chemo is finished and then monitor with scans every 10-12 weeks and as soon as something pops up to treat surgically if possible. Please continue to pray that nothing lights up on any scans especially in the lymph nodes since that indicates that cancer is not treatable...
Hello Nancy! John and I are thinking about you this morning! The Cancer Owl comic is a great way to let us know the frustration of chemo brain, and what you are experiencing right now. You are in our hearts and prayers daily, and the prayers of several of our church prayer groups. You are a woman of great courage and determination Nancy. We admire you and love you very much. Hugs to Daniel and your mom.
ReplyDeleteSandy and John